From Data to Action: Advancing Public Health through Quality-of-Life Measurement

Stakeholder Forum 2025 Visual 1

26 February 2025 15:00 - 17:00 CET

Online

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2nd Stakeholder Forum of the EUonQoL project: measuring what matters for cancer patients in Europe.

Join us for an impactful event where we explore the latest developments in Quality of Life (QoL) measurement and its vital role in shaping public health and cancer policies in Europe!

Building on the previous event of the EUonQoL project, we will bring together experts in cancer and QoL research, healthcare professionals, patients, and policymakers to discuss:

  • Next steps of development of the EUonQoL questionnaires following its piloting across Europe
  • Challenges and solutions for the implementation of quality of life measurement in cancer systems across European countries

 

What is the EUonQoL project

EUonQoL is an EU-funded initiative aiming to develop, pilot, validate and disseminate the European Oncology Quality of Life toolkit (EUonQoL-Kit), which is a unified set of questionnaires for the assessment of quality of life among cancer patients.

Part of the EU Cancer Mission, EUonQoL bears the long-term ambition of improving quality of life and wellbeing for cancer patients across Europe, informing better cancer policies through implementation of standardised measurement at national level.

 

As a participant, we want to hear from you:

  • What are successful examples of quality of life measurement in national cancer systems?
  • What are the main challenges to implement quality of life measurement in cancer care?
  • What are the infrastructure and regulatory requirements for successful deployment of quality of life measurement to cancer patients’ benefits?

The meeting will include interactive sessions to discuss these questions and participants’ input will be incorporated into a landmark policy report.

Whether you’re a researcher, policymaker, patient, or healthcare professional, the EUonQoL Stakeholder Forum is your chance to have your voice heard as we work to shape the future of quality of life in cancer!


 

This project has received funding from the European Union's Horizon Europe Research and Innovation Programme under Grant Agreement Nº 101096362.

Speakers

  • Cinzia Brunelli EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
  • Olatz Garin Associated Researcher, Hospital Del Mar Research Institute, Barcelona
  • Morten Aagaard Petersen Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen
  • Femke van Schelven Postdoctoral Researcher, NIVEL
  • Alen Brkic Postdoctoral Researcher, Oslo University Hospital
  • Marion L'hôte Senior Policy Officer, European Cancer Organisation

Speakers

  • Cinzia Brunelli EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
  • Olatz Garin Associated Researcher, Hospital Del Mar Research Institute, Barcelona
  • Morten Aagaard Petersen Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen
  • Femke van Schelven Postdoctoral Researcher, NIVEL
  • Alen Brkic Postdoctoral Researcher, Oslo University Hospital
  • Marion L'hôte Senior Policy Officer, European Cancer Organisation
  • Cinzia Brunelli EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano Read Bio
  • Olatz Garin Associated Researcher, Hospital Del Mar Research Institute, Barcelona
  • Morten Aagaard Petersen Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen Read Bio
  • Femke van Schelven Postdoctoral Researcher, NIVEL
  • Alen Brkic Postdoctoral Researcher, Oslo University Hospital Read Bio
  • Marion L'hôte Senior Policy Officer, European Cancer Organisation
  • Norbert Couespel Policy Research & EU Projects Manager, European Cancer Organisation

Speakers

  • Cinzia Brunelli EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
  • Olatz Garin Associated Researcher, Hospital Del Mar Research Institute, Barcelona
  • Morten Aagaard Petersen Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen
  • Femke van Schelven Postdoctoral Researcher, NIVEL
  • Alen Brkic Postdoctoral Researcher, Oslo University Hospital
  • Marion L'hôte Senior Policy Officer, European Cancer Organisation
15:00 - 15:05
Welcome and Introduction 
 

Norbert Couespel - Policy Research & EU Projects Manager, European Cancer Organisation

15:05 – 15:15
Presentation of the EUonQoL project
 

Cinzia Brunelli - EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano

15:15 – 15:50
News from the EUonQoL questionnaires: Piloting results and next steps of development
 

Presentation of the key results from the EUonQoL-Kit piloting and discussion on the next steps towards the new version of the Kit through an interactive poll.

  • Cinzia Brunelli - EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
  • Olatz Garin – Associated Researcher, Hospital Del Mar Research Institute, Barcelona 
  • Morten Aagaard Petersen - Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen
15:50 – 16:40
Interactive sessions
 
Break-out room A: Patient involvement in designing quality of life measurement: what have we learnt?

Femke van Schelven - Postdoctoral Researcher, NIVEL (moderator)

With participation of the EUonQoL patient and caregiver co-researchers

 
Break-out room B: Measurement in real-life: how to overcome the challenges to the implementation of quality of life questionnaires in cancer systems?
  • Norbert Couespel - Policy Research & EU Projects Manager, European Cancer Organisation (moderator)
  • Marion L’hôte - Senior Policy Officer, European Cancer Organisation (moderator)
 
Break-out room C: Making EUonQoL a reality: designing the EUonQoL implementation guidelines

Alen Brkic – Postdoctoral Researcher, Oslo University Hospital (moderator)

16:40 – 17:00
Conclusions from the discussions and next steps
 

Cinzia Brunelli - EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
Norbert Couespel - Policy Research & EU Projects Manager, European Cancer Organisation

Speakers

  • Cinzia Brunelli EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
  • Olatz Garin Associated Researcher, Hospital Del Mar Research Institute, Barcelona
  • Morten Aagaard Petersen Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen
  • Femke van Schelven Postdoctoral Researcher, NIVEL
  • Alen Brkic Postdoctoral Researcher, Oslo University Hospital
  • Marion L'hôte Senior Policy Officer, European Cancer Organisation

Speakers

  • Cinzia Brunelli EUonQoL Project Coordinator, Istituto Nazionale dei Tumori di Milano
  • Olatz Garin Associated Researcher, Hospital Del Mar Research Institute, Barcelona
  • Morten Aagaard Petersen Senior Researcher, Bispebjerg and Frederiksberg Hospital​, Copenhagen
  • Femke van Schelven Postdoctoral Researcher, NIVEL
  • Alen Brkic Postdoctoral Researcher, Oslo University Hospital
  • Marion L'hôte Senior Policy Officer, European Cancer Organisation