Project Duration: October 2022 to September 2027
Adolescents and Young Adults (AYA) with a cancer diagnosis form a unique group. They face age-specific issues (e.g. infertility, unemployment, financial problems) and decreased quality of life due to cancer and its treatment.
The STRONG-AYA will be coordinated by the Netherlands Cancer Institute (NKI) and is a new, interdisciplinary, multi-stakeholder European network to improve healthcare services, research and outcomes for Adolescents and Young Adults (AYA) with cancer, defined as individuals aged 15-39 years.
ECO is the Work Package Leader of Work Package 4, which consists of the operation of ecosystems and stakeholder/patient involvement and dissemination, exploitation and communication activities to ensure STRONG-AYA network sustainability and scalability in the long-term.
The project will develop a Core Outcome Set (COS) for AYAs with cancer that will be implemented in 5 national healthcare systems (France, Italy, the Netherlands, the United Kingdom and Poland) and establish national infrastructures for outcome data management, clinical decision-making and a pan-European ecosystem.
Visit here the project page on CORDIS, the European Commission’s primary source of research results from the EU's framework programmes for research and innovation.