The European Cancer Organisation (ECO) has published an action report today: The European Health Data Space and Cancer: Applying Lessons Learnt for Successful Implementation. The report provides a detailed account of the presentations and contributions shared during the June 2022 ECO Community 365 Roundtable Meeting on the European Health Data Space and Cancer.
This meeting brought together leading policy-makers, politicians, oncology experts, and patient advocates to discuss EU policy developments related to the ongoing digital transformation of cancer care, with a special focus on the opportunities and challenges associated to the creation of a European Health Data Space (EHDS), and its potential impact for the improvement of cancer care across Europe.
The roundtable aimed to:
This roundtable was organised by ECO in collaboration with the Digital Health Network, one of the ten ECO Focused Topic Networks, and the Community 365 group of charity, philanthropy, and industry contributors to the Focused Topic Networks.
Main outcomes from the roundtable include:
Commenting on the report, Wim Oyen, Digital Health Network Co-Chair, said: "Stakeholders across the cancer community expressed concerns about the fragmentation of health data and invested hope that the EHDS will help overcome such data silos. Health data integration is paramount to unlock the potential of the digital revolution in cancer care. The Community 365 Roundtable highlighted how the EHDS can foster health data connectivity and interoperability through data translator, interoperability targets and federated models."
"A multi-level and multi-stakeholders’ governance approach is vital to make the EHDS a success." said Carlo Catalano, Digital Health Network Co-Chair. "Collaboration between different stakeholders, including patients, healthcare professionals and regulatory authorities as well as co-design with end-users will be critical for the successful development and implementation of the EHDS. The Community 365 Roundtable emphasised the importance of a continuous dialogue when bringing the EHDS to life."
Read the full report here.