Shaping Europe’s Cancer Information Portal: A Stakeholder Co-Creation Forum

How can Europe ensure that patients, caregivers and healthcare professionals have access to clear, trustworthy and accessible cancer information?

 

These questions will be at the centre of the next stakeholder forum for the EU-CIP project, bringing together patients, healthcare professionals, policymakers and digital health experts to review the ongoing development of the European Cancer Information Portal (EU-CIP).

 

The forum will provide an opportunity to learn more about the project and to engage directly in shaping its future direction. Through interactive breakout sessions for different audiences (ranging from policymakers to patient advocates to clinicians), participants will be invited to share perspectives on how digital tools can support patient empowerment, improve access to reliable information and strengthen communication between patients and healthcare professionals across the cancer journey.

 

16 April 2026 15:00 - 17:00 CEST

Online

 Apply for Registration

eu cip stakeholder forum landscape 1 v2

EU-CIP is a Horizon Europe initiative working to improve access to high-quality, evidence-based cancer information for patients, survivors and caregivers across all member states in an innovative, unified manner. By creating a coordinated network of patient-centred cancer information portals supported by a shared library of trusted content, the project is designed to strengthen health literacy, reduce inequalities in access to information and support more informed decision-making for all.

This stakeholder forum forms a key part of the project’s co-creation approach. Participants will take part in a highly interactive discussion focused on two core perspectives:

  • One session will explore what the project can concretely do to support patient empowerment, accessibility and digital health literacy. Participants will be invited to share their perspectives on trust, inclusivity and the role of digital tools in complementing human care.
  • The second session will focus on how the portal could be integrated into clinical practice and used to support communication between healthcare professionals and patients.

The outcomes of these discussions will be shared in a plenary session and will inform the project’s ongoing stakeholder overall engagement, outreach and policy work

Related Resources

  • EU-CIP Official Website
    visit

Speakers

  • Bianca Cucoș Policy and Research, Centre for Innovation in Medicine (INO MED)
  • Šarūnas Narbutas Co-Founder and Chairman, Youth Cancer Europe
  • Asta Tamulėnė Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Harald Wagener Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité
  • Richard Price Policy Director, European Cancer Organisation

Speakers

  • Bianca Cucoș Policy and Research, Centre for Innovation in Medicine (INO MED)
  • Šarūnas Narbutas Co-Founder and Chairman, Youth Cancer Europe
  • Asta Tamulėnė Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Harald Wagener Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité
  • Richard Price Policy Director, European Cancer Organisation
  • Bianca Cucoș Policy and Research, Centre for Innovation in Medicine (INO MED)
  • Šarūnas Narbutas Co-Founder and Chairman, Youth Cancer Europe
  • Asta Tamulėnė Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Harald Wagener Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité
  • Richard Price Policy Director, European Cancer Organisation

Speakers

  • Bianca Cucoș Policy and Research, Centre for Innovation in Medicine (INO MED)
  • Šarūnas Narbutas Co-Founder and Chairman, Youth Cancer Europe
  • Asta Tamulėnė Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Harald Wagener Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité
  • Richard Price Policy Director, European Cancer Organisation

 

15:00 - 15:05

Welcome and Introduction

15:05 - 15:15

Opening keynote: Why Trusted Cancer Information Matters for Patients, Health Systems and Policy

Speaker: Šarūnas Narbutas, Co-Founder and Chairman, Youth Cancer Europe

15:15 - 15:25

Presentation of the EU-CIP Project

Speaker: Harald Wagener, Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité

15:25 - 15:35

Questions and Answers with Participants

15:35 - 16:15

Interactive Stakeholder Co-Creation Session

Participants will join one of the two facilitated breakout rooms aligned with EU-CIP’s core stakeholder groups and deliverables.

  • Break-out room A: Empowering Patients and Caregivers: Building Trust, Accessibility and Digital Health Literacy
    Speakers: Šarūnas Narbutas, Co-Founder and Chairman, Youth Cancer Europe & Asta Tamulėnė, Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Break-out room B: Supporting Healthcare Professionals: Integrating EU-CIP into Clinical Practice
    Speaker: Bianca Cucoș, Policy and Research, Centre for Innovation in Medicine (INO MED)

16:15 - 16:25

Coffee Break

16:25 - 16:35

Conclusions from the Break-out Rooms

16:35 - 16:55

From Innovation to Impact: Policy Perspectives on Patient-Centred Cancer Information

16:55 - 17:00

Concluding Remarks

Speakers

  • Bianca Cucoș Policy and Research, Centre for Innovation in Medicine (INO MED)
  • Šarūnas Narbutas Co-Founder and Chairman, Youth Cancer Europe
  • Asta Tamulėnė Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Harald Wagener Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité
  • Richard Price Policy Director, European Cancer Organisation

Speakers

  • Bianca Cucoș Policy and Research, Centre for Innovation in Medicine (INO MED)
  • Šarūnas Narbutas Co-Founder and Chairman, Youth Cancer Europe
  • Asta Tamulėnė Project Manager, Lithuanian Cancer Patient Coalition (POLA)
  • Harald Wagener Group Leader Cloud & IT, Health Data, Berlin Institute of Health at Charité
  • Richard Price Policy Director, European Cancer Organisation