Community 365 Roundtable Meeting on Patient-Reported Outcome Measures in Oncology: Unrealised Potential?

On Tuesday 4 July, 14:30-17:00 CEST, the European Cancer Organisation will facilitate the next Community 365 Roundtable Meeting on Patient-Reported Outcome Measures in oncology: Unrealised Potential?

 

Roundtable Co-Chairs Isabel Rubio (ECO Board Member and ESSO President) and Zorana Maravic (ECO PAC Member and CEO of Digestive Cancers Europe) will lead a programme of expert speakers and panels through pertinent and developing aspects of the PROMS agenda.

 

Supported by opportunities with exchange with Roundtable attendees, the gathered perspectives will enable a new ‘Action Report’, with policy recommendations, to be developed from the meeting, reviewed and approved through the ECO Policy Pathway of ECO Member Societies and the ECO Patient Advisory Committee. 

04 July 2023 14:30 - 17:00 CEST

Virtual

 Apply for Registration

View the Recording from the Roundtable meeting here.

Download the Action Report from the Roundtable meeting here.

 

 

 

Programme

14:30-14:40 – Welcome and introductions
Roundtable Co-Chairs:
  • Zorana Maravic, Co-Chair, Patient Advisory Committee Member, European Cancer Organisation; and Chief Executive Officer, Digestive Cancers Europe
  • Isabel Rubio, Board Member, European Cancer Organisation;and President, European Society of Surgical Oncology

 

14:35-15:20 – The Value of Patient-Reported Outcome Measurement in Oncology

Co-chaired by Isabel Rubio and Ilana Widera, Global Senior Director Breast cancer Opinion Leader & Key Stakeholder Liaison Pfizer

Participants will gain insight into the evolution of PROs, understanding the significance of the cancers they represent in healthcare, including: 

  • The history and background to the advent of patient reported outcome measures
  • The change represented by their use
  • Patient perspectives on their use
  • Specificities of PROM use in respect to cancer
Including contributions from expert speakers:
  • Jammbe Musoro, Senior Statistician and Quality of Life specialist at the European Organisation for Research and Treatment of Cancer (EORTC)
  • Massimo Di Maio, Professor at Department of Oncology, University of Turin
  • Michela Meregaglia, Researcher of Heath Economics & HTA at the Government, Health and Not for Profit Knowledge Group at University Bocconi 
  • Sarah Liptrott, Nurse Leadership Board (NLB) of MDS Foundation
  • Marko Skelin, Assistant Professor, Faculty of Medicine, University of Rijeka 

 

15:20-16:10 – Overcoming Challenges to the Application of PROMs in Daily Life

Co-chaired by Isabel Rubio and Zorana Maravic

The roundtable will address known areas of challenge in implementing Patient Reported Outcome Measures into daily clinical practice, including:

  • The need to achieve greater levels of standarisation in respect to such matters and questionnaires and validation tools
  • Ensuring best use of collected data
  • Achieving efficient use of clinician and patient time
  • Bringing about use of PROMS in comparable format across borders and in all parts of Europe
Including contributions from expert speakers:
  • Candan Kendir, Health Policy Analyst, OECD 
  • Zoltán Kaló, Professor of Health Economics, Center for Health Technology Assessment, Semmelweis University; and Lead Partner, Syreon Research Institute
  • Merce Cases Escuté, Research Manager at Patvocates
  • Katharina Beyer, Postdoctoral researcher at Erasmus MC, BSc in European Public Health and a MSc in Public Policy and Human Development
  • André Deschamps, Past Chair Europa Uomo

 

16:10-16:50 – Patient Reported Outcome Measures and the Current Political Context

Co-chaired by Zorana Maravic, Digestive Cancers Europe, and Kostas Papadakis Head of Oncology Market Access Bayer

Current and future opportunities to improve the use of PROMs in Europe will be discussed and debated, included in the context of:

  • New EU level Health Technology Assessment regulation 
  • Recently published proposals to amend the primary EU pharmaceutical regulatory framework
  • International collaboration
Including contributions from expert speakers:
  • Philippe Roux, Head of Unit DG Health and Food Safety, European Commission
  • Cinzia Brunelli, Senior Researcher Palliative Care, Pain Therapy and Rehabilitation Unit Fondazione IRCCS Instituto Nazionaly Tumori & Chairperson OECI Cancer Outcome Research Working Group
  • Jörg Ruof, Professor of Health Outcomes and Management at Hanover Medical School and Founder, European Access Academy
  • Matti Aapro, Past-President, European Cancer Organisation

 

16:50-17:00 – Wrap-up and conclusions

Speakers

  • Zorana Maravic Patient Advisory Committee Member, European Cancer Organisation, and Chief Executive Officer, Digestive Cancers Europe
  • Isabel Rubio Board Member, European Cancer Organisation, and President, European Society of Surgical Oncology
  • Kostas Papadakis Head of Oncology Market Access Bayer
  • Ilana Widera Global Senior Director Breast cancer Opinion Leader and Key Stakeholder Liaison, Pfizer
  • Philippe Roux Philippe Roux, Head of Unit DG Health and Food Safety, European Commission
  • Candan Kendir Health Policy Analyst, OECD PaRIS & Health Care Quality and Outcomes Programmes Health Division
show all speakers (20)

Speakers

  • Zorana Maravic Patient Advisory Committee Member, European Cancer Organisation, and Chief Executive Officer, Digestive Cancers Europe
  • Isabel Rubio Board Member, European Cancer Organisation, and President, European Society of Surgical Oncology
  • Kostas Papadakis Head of Oncology Market Access Bayer
  • Ilana Widera Global Senior Director Breast cancer Opinion Leader and Key Stakeholder Liaison, Pfizer
  • Philippe Roux Philippe Roux, Head of Unit DG Health and Food Safety, European Commission
  • Candan Kendir Health Policy Analyst, OECD PaRIS & Health Care Quality and Outcomes Programmes Health Division
show all speakers (20)
  • Zorana Maravic Patient Advisory Committee Member, European Cancer Organisation, and Chief Executive Officer, Digestive Cancers Europe
  • Isabel Rubio Board Member, European Cancer Organisation, and President, European Society of Surgical Oncology
  • Kostas Papadakis Head of Oncology Market Access Bayer
  • Ilana Widera Global Senior Director Breast cancer Opinion Leader and Key Stakeholder Liaison, Pfizer
  • Philippe Roux Philippe Roux, Head of Unit DG Health and Food Safety, European Commission
  • Candan Kendir Health Policy Analyst, OECD PaRIS & Health Care Quality and Outcomes Programmes Health Division
  • Zoltán Kaló Professor Health Economics, Center for Health Technology Assessment, Semmelweis University & Lead Partner, Syreon Research Institute
  • Mercè Cases Escuté Research Manager, Patvocates Research WECAN
  • Cinzia Brunelli Senior researcher Palliative Care, Pain Therapy and rehabilitation Unit Fondazione IRCCS Istituto Nazionale Tumori & Chairperson OECI Cancer Outcome Research Working Group
  • Katharina Beyer Postdoctoral researcher Erasmus MC, BSc European Public Health and MSc Public Policy and Human Development
  • André Deschamps PAST CHAIRMAN Europa Uomo
  • Marko Skelin Clinical pharmacy specialist in Croatia and Board Member of the European Society of Oncology Pharmacy
  • Jammbe Z. Musoro Senior Statistician / Quality of life specialist at EORTC
  • Jörg Ruof Professor of Health Outcomes and Management at Hanover Medical School
  • Sarah Liptrott Nurse Leadership Board (NLB) of MDS Foundation
  • Massimo di Maio Professore presso Dipartimento di Oncologia, Università di Torino
  • Matti Aapro Past-President, European Cancer Organisation
  • Michela Meregaglia Researcher of Heath Economics & HTA at the Government, Health, and Not for Profit (GHNP) Division of SDA Bocconi School of Management
  • Norbert Couespel Senior Coordinator, Policy Research & EU Projects, European Cancer Organisation
  • Richard Price Head of Policy, European Cancer Organisation

Speakers

  • Zorana Maravic Patient Advisory Committee Member, European Cancer Organisation, and Chief Executive Officer, Digestive Cancers Europe
  • Isabel Rubio Board Member, European Cancer Organisation, and President, European Society of Surgical Oncology
  • Kostas Papadakis Head of Oncology Market Access Bayer
  • Ilana Widera Global Senior Director Breast cancer Opinion Leader and Key Stakeholder Liaison, Pfizer
  • Philippe Roux Philippe Roux, Head of Unit DG Health and Food Safety, European Commission
  • Candan Kendir Health Policy Analyst, OECD PaRIS & Health Care Quality and Outcomes Programmes Health Division
show all speakers (20)

Speakers

  • Zorana Maravic Patient Advisory Committee Member, European Cancer Organisation, and Chief Executive Officer, Digestive Cancers Europe
  • Isabel Rubio Board Member, European Cancer Organisation, and President, European Society of Surgical Oncology
  • Kostas Papadakis Head of Oncology Market Access Bayer
  • Ilana Widera Global Senior Director Breast cancer Opinion Leader and Key Stakeholder Liaison, Pfizer
  • Philippe Roux Philippe Roux, Head of Unit DG Health and Food Safety, European Commission
  • Candan Kendir Health Policy Analyst, OECD PaRIS & Health Care Quality and Outcomes Programmes Health Division
show all speakers (20)